Fundraiser for charities who have helped young woman with incurable condition

Fundraiser for charities who have helped young woman with incurable condition

Fundraiser for charities who have helped young woman with incurable condition

First published in North Essex

A fundraiser dinner meal is being held to help the charities who have supported a young woman whose condition mean she lives in constant pain.

Bethanie Thorn, 18, has an extreme form of the incurable Ehlers-Danlos Syndrome, a condition that affects the body’s connective tissue.

Her mother Julie, of Silver End, said: “Although she lives in constant pain she doesn’t let it get her down.

“She still meets up with friends and wants to go to university. She got an A in Art and a B in psychology in her AS Levels, even though she didn’t manage to finish the psychology paper.

“She is a really amazing person.”

Julie has organised a charity dinner on Sunday at the Little India Restaurant, Little Maplestead, with the money raised being split between the Ehlers-Danlos Support UK, The Sick Children’s Trust and the Pseudo Obstruction Research Trust, as they have supported the family.

Tickets include a three course meal as well as live entertainment from local bands Loose Joints and Rule of Three, Natasha Corrigan and many more.

There will also be a raffle with prizes donated by Tesco, Sainsbury’s, Colchester Zoo and others.

The dress code is smart casual with the theme of black and white.

Tickets are priced at £20 for adults, £15 for children aged under 12, and £5 for those who, like Bethanie, are j-tube fed or on TPN.

For more information and to buy tickets call Julie on 01376 585985 or 07515636143.

Follow Bethanie’s story on Facebook by searching for Bethanie's Battle.

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