A BABY born with skin so sensitive it blisters when touched has become the inspiration behind a fundraising campaign.

One-year-old Jaxon Stone is believed to be be the only baby born at Broomfield Hospital with Epidermolysis Bullosa, a condition which causes the skin to blister and tear at the slightest touch.

Jaxon has the recessive dystrophic form of the condition which also means he has a higher chance of developing an aggressive skin cancer before the age of 35.

His aunt Hollie Stevens, 27, from The Leas, Burnham, has been holding a raffle and bake sale at Topaz salon in Burnham, where she works as a stylist in aid of the Southminster tot.

She has raised £500 for skincare charity Debra during national EB awareness week.

“My sister Chloe had a completely normal pregnancy and there was nothing wrong,” she said.

“My nephew was born two weeks late and when he was born they wrapped him up but he had got some sores on both his legs.

“They realised he had no skin on his feet, his shin, knee and his hand.

“He was whisked off and they weren’t sure what was wrong with him – he was the first baby with EB born at Broomfield Hospital.

“They contacted Great Ormond Street Hospital and they came down and ran genetic tests and both his mum and dad carry the gene.

"The whole family was so shocked. We went to see him the next day but we were not able to touch him as they were not sure what was wrong.”

Jaxon is doing well but there is no cure for the condition which will have to be managed throughout his life.

Hollie added: “He is doing really well and the skin has grown back on his feet.

“He has a blister on his tongue and they have to be careful when weaning him as people with the condition can get blisters in their mouths and insides.

“He is one of the lucky ones, some children can be covered in sores.”

Those born with EB have skin so fragile they are called ‘butterfly children’ as their skin is as delicate as the wing of a butterfly.

There are thought to be more than 5,000 people living with EB in the UK, and 500,000 worldwide.

Visit www.debra.org.uk for more details on the condition or how to help support those born with it.

The organisation is named after the daughter of its founder, who suffers from the condition.